As most of you know, Blakely was born with Noonan Syndrome. This syndrome can present itself in many different ways and Blakely has had some pretty scary medical issues due to the syndrome. In her short life, Blakely has been hospitalized several times for breathing issues, had open heart surgery, is undergoing treatment for her clubbed feet and works very hard in her therapies to do the best she can in life. We are so very proud of this little warrior!
We would really love to raise awareness about Noonan Syndrome. No one seems to know much about it, including our medical professionals! Ron & I have done a lot of research to get to the knowledge we have regarding our daughter and we hope that we can teach others about how amazing our Noonan baby is!!
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